over 10k
Rare Diseases
~500
Rare Diseases with a Treatment Option
1 in 10
Americans Affected by a Rare Disease
You talk. We listen.
What you have been through matters- and voicing your experience might just change everything.
Winsights.life is developing a patient-powered digital health platform to redefine how real-world evidence (RWE) is collected, valued, and used in healthcare innovation.
Founded by a mother and nonprofit leader driven by both personal experience and professional advocacy, Winsights.life will bridge the divide between lived experience and scientific discovery. This dynamic digital platform transforms qualitative narratives into research-grade insights through AI, ethical design, and human-centered strategy- enabling faster, smarter, and more equitable progress for rare and under served diseases. We believe the future of medicine begins with listening—and that every voice deserves a seat at the table. With transparency, trust, and innovation at our core, we’re building a collaborative ecosystem where patients, caregivers, researchers, and biotech pioneers can work together to reshape what’s possible.
You are not alone.
Connection is the first step to change. Together, we are building something stronger than the struggle; breaking down silos and building up trust, transparency, and progress.
Quality Data
Built on the reality of the patient-experience and backed by scientific rigor, we turn anecdotes into evidence. Our AI-enhanced tools capture the nuances behind every story, transforming insight into impact.
Disease Discovery
Bringing the hidden into focus-one insight at a time, our technology uncovers patterns, accelerates diagnosis, and empowers change.
Research Funding
We turn insights into impact by investing in high-priority, patient-informed research – because lived-experience should shape the future of medicine.
Addressing Unmet Needs
Many unmet needs of patients and caregivers hide in plain sight. By meaningfully listening to the voice of the patients and caregivers, we spotlight the gaps (and the cracks) and fund the solution.
Patient/Caregiver Education
Knowledge is power. We turn complexity into clarity so patients and caregivers can make confident, informed decisions.
Where patients drive progress.
The Health Tech Edge
Harnessing the power of lived experience, real-world evidence, and next-generation AI, Winsights.life is re-imagining healthcare from the ground up. We connect patients, caregivers, researchers, and innovators to accelerate treatments
and insights- together.
AI-Powered Insights
From symptom tracking to solution finding- our AI & machine learning shapes your stories into tomorrow’s care.
Regulatory Grade by Design
From language to structure, we collect real-world insights with the precision needed for research, discovery, and regulatory validation.
Visible Impact
Your voice makes a difference, and you should see that. Graphs, charts, and case studies reflect how your contributions count.
Built on Trust
Blockchain-backed transparency ensures your data is secure, ethically handled, and never misused- because trust is the foundation of progress.
Leading with love.
The Secret to Success
Built from the jarring reality of one mom’s experience in parenting and driving rare-disease research for her daughter, Winsights.life is grounded in the belief that true innovation happens when you listen deeply, collaborate widely,
and never underestimate the insight of a determined parent. We are gathering the voices that matter the most to build something stronger- together.
Collaborative Roots
Co-created with patients, caregivers, researchers, and industry professionals to reflect real needs and enhance the quality of life for patients and caregivers.
Parent-Driven Insight
Dreamed of and guided by a mother and patient advocate; built on empathy, resilience, and relentless curiosity.
Science with Soul
Bridging first-hand knowledge and research rigor to inspire innovations that truly matter.
Listening, Then Leading
Understanding starts with hearing what matters. When we listen first, we build better.
Real Potential
We’ve shared our Lean Start-Up concept with a range of leaders across research, biotech, and health tech. The response has been overwhelmingly supportive.
I love the principle of your idea.
National research leader focused on rare disease innovation
Your business model will open doors with anyone. You are definitely on the right track.
Senior faculty member and innovator in biomedical engineering and systems modeling at a Tier 1 University
The demand for this will be enormous.
Physician-scientist and founder of multiple neurotherapeutic initiatives at a Tier 1 University
Kasey is building with the rare combination of heart, intellect, and bold clarity. Her startup isn’t just innovative- it’s deeply human. Every step she takes is anchored in purpose and poised for impact.
ChatGPT, collaborative strategist & writing partner
Rare disease isolates. Winsights.life unites.
Our Team
Our team is forming, but the purpose is clear; to unite lived-experience, science, and technology to drive real-world change. Envisioned by a mom who believed in a better way, Winsights.life is building a mission-driven team of visionary
thinkers who recognize the inspiration in every voice, the importance of understanding the patient/caregiver’s unique disease experience, and the power of collaboration. Please use the contact form below, or email kasey@winsights.life if you think you have the experience, passion, and vision to help shape something that could change lives. We are not just building a team- we are building a movement. And there is room for change-makers here.
Kasey Edwards
Founder + CEO
Driven by the urgent need to find answers, and outcome measures, for her daughter’s ultra-rare neurogenetic disorder, AP-4 hereditary spastic paraplegia, Kasey has spent almost a decade spearheading collaborative efforts across research, advocacy, and clinical innovation. Her work, and networking, has contributed to a key biomarker discovery for her daughter’s disorder, expanding their patient registry, and finding researchers whose therapeutic discoveries have shown early promise in computer predictions in AP4B1 knock-out tadpoles..
Linda Moulton
Strategic Advisor
Linda is an experienced Chief Executive with a demonstrated history of working in the international healthcare and financial services industries. Linda now operates as a management consultant after her role as COO of a New York-based NGO building a health care and education campus in Burundi in East Africa. Prior to her Africa work, Linda was the CEO of Lahey International Health at Massachusetts-based Lahey Hospital and Medical Center; managing a team focused on developing and sustaining international patient-care markets.
Linda was also CEO of 10 Tru Technologies, Inc, a Massachusetts-based privately held technology company. With her team, Linda grew the business to $35 million in revenues, then successfully executed the sale of its two divisions.
Tamar Lasky
Real World Data & Real World Evidence Advisor
Dr. Tamar Lasky recently retired from US FDA where she served as Senior Advisor on Real-world Evidence in the Office of the Commissioner’s Office of Digital Transformation.
In addition to providing expertise on use of real-world data and evidence in addressing the COVID-19 pandemic and providing technical and scientific support to the Reagan-Udall Foundation’s COVID-19 Evidence Accelerator, she led initiatives to describe issues around real-world race and ethnicity data, most notably the precision FDA, “Making Sense of EHR Race and Ethnicity Data Challenge” as well as an inter-agency initiative to collaborate on data issues around the HHS “test-to-treat” program. Dr. Lasky’s interests include RWD/RWE, maternal and child health, vaccine safety, systematic literature review, and racial and ethnic health disparities. Dr. Lasky has a PhD in Epidemiology and is a Fellow (FISPE) of the International Society for Pharmacoepidemiology.
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